There is no one who understands how migraine disease impacts a person's daily life more than someone living with migraine. Our aim is to get a direct perspective from the migraine community on the use of medical devices, treatments, insurance coverage challenges, and how this disease affects their quality of life. The survey results are shared with migraine patients and medical providers, shedding light on this debilitating condition, as well as being utilized to help effect payor and policy change for improved access to treatment options.
On this page you can find our current surveys that are open to participants, as well as summary reports on previous surveys. In 2023 we are continuing our partnership with the Headache and Migraine Policy Forum to conduct these confidential surveys. The mission of The Headache & Migraine Policy Forum is to advance public policies and practices that promote accelerated innovation and improved access to treatments for persons living with headache disorders and migraine disease. We are very grateful for their support!
The following surveys have been completed in partnership with the Headache and Migraine Policy Forum:
Step Therapy for Migraine
Often, medical providers prescribe medications that are denied by insurance companies. Prior to covering the new medication, the insurance company requires that you try the preferred list of medications. In most cases, these medications are less expensive or have been on the market for a longer period of time. This is called Step Therapy. We conducted this survey to better understand how Step Therapy has impacted migraine treatment and patient quality of lives. One respondent shared, "Step therapy, imposed by the insurance company, is a conflict of interest and an interruption of the relationship
between the doctor and patient who know better what the patient needs." Click to read more from the summary report.
Medical Devices for Migraine
This survey was conducted to better understand if and how people with migraine and other headache disorders are using medical devices, and what the primary challenges faced are. 326 respondents were gathered through social media and email.
About 46% of respondents have tried to get a medical device covered by their insurance, although most insurance companies do not provide coverage for these devices. One respondent shared, “My daughter and I would love to try a medical device for migraine but they are cost-prohibitive.” Click to read more from the summary report.
Migraine in the ER and Urgent Care
This online survey was conducted to better understand the experience people with migraine have in the emergency room and urgent care. 500 responses were gathered via social media and email.
88% of respondents went to the ER or an urgent care facility due to lack of access to a healthcare professional who could treat their migraine. One respondent shared, “The treatment for migraine in ER/UC is complicated by our overstressed medical system and the fact that there are some who seek inappropriate treatment without adequate follow up.”
Combination Therapy for Migraine
This survey was conducted to better understand the experience people with migraine have with combination therapy for migraine. 516 responses were gathered via social media and email.
On average, 60% of respondents report having 15 migraine days or more a month. One respondent stated, “Having to meet specific criteria in order to access certain types of drugs scripted by my team of professionals is frustrating. They recommend a specific treatment and I can't follow it until I jump through insurance hoops. Insurance companies should not be able to dictate medical steps in my journey to treat my chronic illness. My team of dedicated professionals and I should have a much bigger say in the steps I take.” Click to read more from our summary report.