My Experience with Ketamine Infusion at Jefferson Headache Center

Ketamine is a medication that is sometimes used off-label for migraine treatment, and headache specialists on the cutting edge of migraine treatment sometimes prescribe it as a nasal spray or by in-patient infusion. Many patients aren’t aware that this is an option, and there is little known about what it is like to get an in-patient infusion,…

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Creating a Migraine Preventive Action Plan

Bearing in mind that migraine is a disease that can chronify, it’s not only important to know the signs for when preventive treatment is appropriate, but also have a road map to follow once you’re in that place. A Preventive Action Plan (PAP) is a road map for treatment communication and care planning. Having a PAP gives you a sense of direction and independence as well as the greatest potential for relief. It raises awareness of different approaches to preventive migraine treatment, and it also makes you a partner with your doctor in your disease management and healthcare. Your involvement in a PAP is essential, because you know your body best, you know how migraine is impacting your life, and the PAP needs to be integrated by YOU into your care and daily life.

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The Importance of Finding a Headache Specialist

Those with migraine face many challenges accessing quality care and treatment. Insurance barriers, lack of knowledgeable practitioners, stigma, and nervousness and anxiety due to previous negative experiences can make it very difficult to obtain appropriate healthcare. That’s why one of the most important things you can do is find a certified headache specialist or doctor who understands this complex disorder and is willing to partner with you on a treatment plan.

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Medical Gaslighting and Migraine: It’s Not All in Your Head

Medical gaslighting happens when healthcare providers dismiss, explain away, or don’t believe a patient’s symptoms. While this can happen to anyone, it’s especially common for women, and those struggling with invisible illnesses like migraine. It’s a dangerous practice that often results in misdiagnosis and/or the inability to receive appropriate and timely treatment and care.

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White Coat Syndrome and Migraine

Many people with migraine experience what is called white coat syndrome, also known as white coat hypertension, which happens when someone develops higher blood pressure in the presence of a physician or other healthcare professional than is normal for them. White coat syndrome can happen to anyone, but for those with migraine, a trip to the doctor’s office can be especially anxiety-producing. As a result, in addition to higher blood pressure patients can experience increased anxiety, palpitations, fear, tightness in the chest, and more. What is most sad is that for some people the experience is so severe that it impacts their willingness to see a doctor, and access the care they need for disease management.

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Excited to Try a Virtual Headache Clinic

After a lot of teamwork with my local neurologist, I felt that my health was finally well-managed, but then a new problem presented itself and both my neurologist and I were both puzzled. I thought I knew what I had, but the doctor hadn’t heard of it and he certainly had no idea how to treat it. Then I heard about Neura Health, a virtual headache clinic led by Dr. Thomas Berk, a certified headache specialist at NYU Langone in New York. I hadn’t used telehealth much before, but despite that I was excited at the prospect, and I wanted to see how the Neura Health program worked

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Seeing a Headache Specialist

At times, living with migraine can feel overwhelming, challenging and isolating. That’s why one of the most important things you can add to your migraine treatment toolbox is a qualified doctor who can help you navigate treatment options and develop a personalized treatment plan. A headache specialist can help you understand your specific type of migraine and work with you to improve your overall quality of life. If you’re living with migraine, you don’t have to go at it alone. Here are 7 signs it may be time to see a headache doctor or specialist:

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The Headache Doctor Crisis is All Too Real

There is fewer than one headache specialist for every 85,000 headache and migraine patients in the United States. This figure is similar to other countries around the world, and sometimes even worse. For the vast majority of us, this critical shortage of headache specialists requires us to work with someone who doesn’t specialize in headache…

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An Open Letter to My Doctors

“Please don’t give up on me!” It’s a silent plea that rarely is verbalized but which trails so many of us doggedly. Even when we’ve had good experiences with the medical profession this concept of “giving up” often lingers. Sadly, migraine disease is often treated differently than other diseases. There is more of a tendency to give up – both ourselves, society and even healthcare professionals. It is more likely for people with migraine to be told to “accept” things as they are or accept minimal improvement.

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