Patient Stories
Life With Migraine in College: 3 Tips to Survive
Do you ever feel embarrassed about your struggle with migraine in college? I felt this way throughout most of my college career. It never struck me as something that I needed to make a big deal about, especially to friends. It was just pain, as far as I was concerned, and not something I usually…
Read MoreThe Privilege Of Being Able-Bodied: Life With Migraine
A change in my healthcare plan suddenly made me aware of the privilege of being able-bodied! I work in people management, and have for the last half-decade of my life. I’ve always been big on communication and leading with empathy. Traits that, in my opinion, are invaluable to any role where you work with other…
Read MoreFostering Empathy in a Migraine-Filled Relationship
How Can We Foster Empathy in a Migraine-Filled Relationship? Do either you or your partner suffer from migraine attacks, or perhaps even both of you? It’s not uncommon, given that over 42 million live with migraine in the US alone. Like any physical or mental disability, migraine can bring a new layer to your relationship.…
Read MoreGrowing Up With a Disabled Parent: Empathy or Resentment?
It would be an understatement to say that it’s difficult growing up with a parent who struggles with a disability. It changes the way you view your parents, friends, and even your own health at times. In this two-part series, I’ll examine how this impacts different parts of a child’s life. In this first part,…
Read MoreMigraine as a Coworker
Having migraine as a coworker can be challenging. None of us are strangers to calling out of work for one reason or another. Whether this was a more frequent occurrence at some of our first low-level jobs, or out of necessity at our current job, it’s something we’ve all experienced at some point. For those…
Read MoreThe Real Voice of Migraine
There is no shortage of online migraine information (or misinformation) lately. It seems whenever I check my social media feeds or Google, so-called experts have something to say. For instance, sharing the latest treatment hack, like soaking your feet in hot water to stop an attack! By the way… in case you’re wondering, that doesn’t…
Read MoreMigraine Behind the Mask: Making a Difference Together
What Does Migraine Look Like For You? Every year, Migraine Meanderings asks our migraine community to participate in the Migraine Behind the Mask awareness campaign. This migraine advocacy campaign aims to help people without migraine better understand what life with migraine is like. Migraine is a highly stigmatized disease, and our campaign lets people with…
Read MoreOn a Deserted Island with Migraine?
“How can I feel lonely? I have my family around me and it’s my birthday weekend. Our daughter is visiting, who I haven’t seen in a while, and she’s spending 4 days with us–I’m over the moon excited! I have a migraine action plan that my headache specialist and I developed which, hopefully, will keep…
Read MoreJourney On: My Journey Living with Vestibular Migraine
The Beginning Looking back now, my journey began 11 years ago on July 14, 2011. Little did I realize that my life would change forever on that day. I remember having a history of bad headaches on and off since college, but now I had begun to experience horribly intense ones. I will always remember the afternoon…
Read MoreMy Experience with Ketamine Infusion at Jefferson Headache Center
Ketamine is a medication that is sometimes used off-label for migraine treatment, and headache specialists on the cutting edge of migraine treatment sometimes prescribe it as a nasal spray or by in-patient infusion. Many patients aren’t aware that this is an option, and there is little known about what it is like to get an in-patient infusion,…
Read MoreSigns It’s Time for Prevention
As someone who lives with migraine, do YOU realize how IMPORTANT it is to be aware of your silent disease?? I’m not speaking of just your attacks but also your overall migraine days. Do you know the difference? Is there a difference? Do your days blur into one long week or month? And, did you know that there are signs to be aware of that show you need to consider preventive treatment, or reconsider the preventive treatment you are on. Yes, that can be scary, but the consequence of not being proactive with this disease can have a disabling and long-term impact on your life.
Read More“I Hope You Feel Better”
Parenting with migraine is not easy, but holding tight to sweet moments helps keep things in perspective.
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