Journey On: My Journey Living with Vestibular Migraine
The Beginning Looking back now, my journey began 11 years ago on July 14, 2011. Little did I realize that my life would change forever on that day. I remember having a history of bad headaches on and off since college, but now I had begun to experience horribly intense ones. I will always remember the afternoon…Read More
My Experience with Ketamine Infusion at Jefferson Headache Center
Ketamine is a medication that is sometimes used off-label for migraine treatment, and headache specialists on the cutting edge of migraine treatment sometimes prescribe it as a nasal spray or by in-patient infusion. Many patients aren’t aware that this is an option, and there is little known about what it is like to get an in-patient infusion,…Read More
Signs It’s Time for Prevention
As someone who lives with migraine, do YOU realize how IMPORTANT it is to be aware of your silent disease?? I’m not speaking of just your attacks but also your overall migraine days. Do you know the difference? Is there a difference? Do your days blur into one long week or month? And, did you know that there are signs to be aware of that show you need to consider preventive treatment, or reconsider the preventive treatment you are on. Yes, that can be scary, but the consequence of not being proactive with this disease can have a disabling and long-term impact on your life.Read More
“I Hope You Feel Better”
Parenting with migraine is not easy, but holding tight to sweet moments helps keep things in perspective.Read More
Parenting with Migraine
Teaching kids how to do things for themselves is helpful for when I have a migraine. But, it also empowers them. When my daughter was 3, instead of feeling defeated that I was struggling to make her a sandwich, I tried to celebrate that my 3 year old could make her own sandwich! It taught me to reframe my perspective, and that has been incredibly helpful ever since!Read More
Chronic Migraine: Please Believe
Chronic Migraine: It’s real- please believe!
Behind that smile is an ocean of tears
Tears you will likely never see
Known only to those closest to me
Who watch the struggle to rise above
The courage it takes to face another day of unknowns and fear.
How Do You Live Your Dash?
My favorite place to take my puppy for a walk is the cemetery. It is just a calming place to me. I love to read the headstones and think about the life each person lived; how they “lived their dash.” While we can learn from our past we should never dwell on it. And we gain nothing but stress if we worry about our future. But we can think about how we live our dash; our present life.Read More
COVID COVID Go Away – A Test in Self Advocacy!
As it turned out, self-advocacy really was the key. Learning to advocate for myself made all the difference as I faced the unknown. Self-advocacy is such an important part of chronic illness, but one that sadly we often set aside. Remember, your healthcare is about YOU, and your relationship with your doctor is a PARTNERSHIP. You have a right to speak up. You have a right to be heard and taken seriously. You have a right to be involved at every level!Read More
Hope Will Long Last
A migraine poem by Deborah Bloom: Hope Will Long Last – Some may question this disease that they cannot see but it is not invisible to you and to me. Migraine you may refuse to let me loose, but I will continue on my quest; today and the tomorrows I will pick myself up and strive to do my bestRead More
I Have a Friend
I Have a Friend poem that talks about the impact of connection when you live with chronic pain or illness.Read More
The End of the Line? Part 2
With six weeks of an intensive pain program under my belt I’m finally able to see the finish line of this 8-week journey. The lack of blogs and posts the past few weeks likely tells its own story – I’m exhausted! But apart from exhaustion, are there things to be learnt? Has this been a worthwhile experience or a lesson in futility?!Read More