The Squeaky Wheel Gets the Oil
One of the most challenging things many of us with chronic illnesses have to face is trying to advocate for ourselves in the healthcare system. Somehow, it just seems wrong that when we are the sickest, we often have to push the hardest. Timely and appropriate medical care should not be such a challenge, yet… sadly, it…Read More
The Empowered Patient: How to take an active role in your health and care
The World Health Organization defines patient empowerment as “a process through which people gain greater control over decisions and actions affecting their health.” Becoming an empowered patient can help ensure you’re receiving quality treatments that are right for you and increase your chances of healing.Read More
Migraine Behind the Mask: How to Participate!
The month of June is Migraine and Headache Awareness Month. As a part of our Empowering Patient Voices initiative we will be doing a series of posts highlighting the devastation of migraine, cluster, and other headache disorders. We are inviting you to participate by sending in photographs to be featured!Read More
Introducing Empowering Patient Voices
Empowering Patient Voices Launch Hope for Migraine and Migraine Meanderings are excited to announce the launch of our Empowering Patient Voices initiative. In 2021, this initiative will be introducing three approaches to Empowering Patient Voices: Out from the Shadows: Real Voice of Migraine Out from the Shadows: Migraine Behind the Mask Out from the Shadows:…Read More
Building A Sense of Community – A Daunting Task?
Migraine can be a rough disease to live with and learn to manage. One that can easily leave any of us feeling emotionally and socially isolated. I can finally say that the migraine community has become an important part of my life, but it has been quite a journey. For many of you the pressing question may be: How do I even begin to get connected?Read More
A Journey Towards Self-Advocacy
I know for many self-advocacy is difficult. It is time consuming. It is hard to do when you are in pain. It is frustrating, being sent from one person to another and back again. It is discouraging dealing with unfriendly people, and it can be incredibly hard to find a good doctor to work with. In short, it is not easy! However, it is something we all must learn to do in order to get the very best treatment we deserve for our health.Read More
How Virtual Communities Are Shaping Migraine Advocacy
Migraine and headache communities have cultivated a safe space in the virtual world. As COVID-19 changed the landscape of the world around us, the headache community maintained its steady pace of providing content to those in need. What has amazed me is how the community has continued to rally with patients. While I have found online communities helpful for many years, I noticed something special about this community. Patient advocacy is the heart of the community.Read More