Posts Tagged ‘migraine life’
Migraine Behind the Mask: How to Participate!
The month of June is Migraine and Headache Awareness Month. As a part of our Empowering Patient Voices initiative we will be doing a series of posts highlighting the devastation of migraine, cluster, and other headache disorders. We are inviting you to participate by sending in photographs to be featured!
Read MoreWhat is a Migraine Attack Really Like?
Have you ever wondered what a migraine attack is really like? For anyone who has ever experienced a bad migraine attack you will be well aware that it is so much more than just a headache – it is often a whole body breakdown that can leave you only partially functioning or even unable to…
Read MoreIntroducing Empowering Patient Voices
Empowering Patient Voices Launch Hope for Migraine and Migraine Meanderings are excited to announce the launch of our Empowering Patient Voices initiative. In 2021, this initiative will be introducing three approaches to Empowering Patient Voices: Out from the Shadows: Real Voice of Migraine Out from the Shadows: Migraine Behind the Mask Out from the Shadows:…
Read MoreThe Real Face of Migraine May Surprise You
Some of the strongest and most resilient people I know are those who live with chronic migraine. That may be surprising to many, but migraine is not your typical “headache.” The Interictal Period In fact, the disease presents itself in a wide variety of ways, many of which can be completely disabling and on a…
Read MoreHow Do You Live Your Dash?
My favorite place to take my puppy for a walk is the cemetery. It is just a calming place to me. I love to read the headstones and think about the life each person lived; how they “lived their dash.” While we can learn from our past we should never dwell on it. And we gain nothing but stress if we worry about our future. But we can think about how we live our dash; our present life.
Read MoreLiving with the Migraine Monster
Looking at ways that people with migraine depict this disease, one of the terms I see often is the “migraine monster.” It’s a term that particularly resonates with me for many reasons. After all, migraine can be scary, and it’s often hard to know how to fight it. More so, it seems to lurk in…
Read MoreChocolate Does NOT Trigger My Migraine Attacks
Please, please stop telling me to stop eating chocolate! I wish it were that simple to make my migraine stop, but migraine triggers never are. I still remember being an inpatient for three weeks of intensive migraine treatment and being “banned” from the hospital store! However, one good thing that came out of it was…
Read MoreCOVID COVID Go Away – A Test in Self Advocacy!
As it turned out, self-advocacy really was the key. Learning to advocate for myself made all the difference as I faced the unknown. Self-advocacy is such an important part of chronic illness, but one that sadly we often set aside. Remember, your healthcare is about YOU, and your relationship with your doctor is a PARTNERSHIP. You have a right to speak up. You have a right to be heard and taken seriously. You have a right to be involved at every level!
Read MoreWhen the Guilt of Migraine Gets to be Too Much
If I were to be honest, for decades I wore guilt like a well-worn coat. Guilt that I couldn’t hang out with my friends. Guilt of not being the wife I thought I should be. Guilt about not being there for my children like other mothers. Even guilt that the things my doctors suggested weren’t helping.…
Read MoreMigraine Is Invisible – But We Are Not
Migraine is invisible but we are not and this is our voice. The voice of 40 million in the USA and 1 billion worldwide.
Read MoreWhat’s In Your Toolbox? Migraine Friendly Products
With an often overwhelming array of “products” that either claim to help migraine or make life more manageable, it can be hard to know where to start. In fact, it’s easy to throw our hands up and say, “This is simply too much” and end up relying only on pharmaceutical options. However, with a disease…
Read MoreWhat’s In Your Toolbox? Migraine and Cannabinoids
It is interesting that with the rise in migraine research and FDA approval of multiple new treatments, there is a corresponding rise in interest in alternative treatments. Possibly seen most clearly in the area of cannabinoids, there is a growing awareness of the need for options that work but which also have few or no…
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