Life with Migraine
Introducing Empowering Patient Voices
Empowering Patient Voices Launch Hope for Migraine and Migraine Meanderings are excited to announce the launch of our Empowering Patient Voices initiative. In 2021, this initiative will be introducing three approaches to Empowering Patient Voices: Out from the Shadows: Real Voice of Migraine Out from the Shadows: Migraine Behind the Mask Out from the Shadows:…
Read MoreThe Real Face of Migraine May Surprise You
Some of the strongest and most resilient people I know are those who live with chronic migraine. That may be surprising to many, but migraine is not your typical “headache.” The Interictal Period In fact, the disease presents itself in a wide variety of ways, many of which can be completely disabling and on a…
Read MoreLooking Back We’ve Come Farther Than You Think
Human nature all too often seems to be slanted towards seeing what is missing and the negative. We see what still needs to be done. We take note of what is lacking. We see the glass as half empty rather than half full. For some people, that is their general outlook on life. However, for…
Read MoreNew Year New Determination
One of the most surprising ways I heard myself described this year was as a “glass-half-full kind of person.” “Definitely NOT me,” was my immediate reaction! In fact, I think it would be more accurate to say that I’m an “I don’t want to get out of bed today” kind-of-person. My husband can definitely attest…
Read MoreHow Do You Live Your Dash?
My favorite place to take my puppy for a walk is the cemetery. It is just a calming place to me. I love to read the headstones and think about the life each person lived; how they “lived their dash.” While we can learn from our past we should never dwell on it. And we gain nothing but stress if we worry about our future. But we can think about how we live our dash; our present life.
Read MoreLiving with the Migraine Monster
Looking at ways that people with migraine depict this disease, one of the terms I see often is the “migraine monster.” It’s a term that particularly resonates with me for many reasons. After all, migraine can be scary, and it’s often hard to know how to fight it. More so, it seems to lurk in…
Read MoreChocolate Does NOT Trigger My Migraine Attacks
Please, please stop telling me to stop eating chocolate! I wish it were that simple to make my migraine stop, but migraine triggers never are. I still remember being an inpatient for three weeks of intensive migraine treatment and being “banned” from the hospital store! However, one good thing that came out of it was…
Read MoreWhen the Guilt of Migraine Gets to be Too Much
If I were to be honest, for decades I wore guilt like a well-worn coat. Guilt that I couldn’t hang out with my friends. Guilt of not being the wife I thought I should be. Guilt about not being there for my children like other mothers. Even guilt that the things my doctors suggested weren’t helping.…
Read MoreMigraine Is Invisible – But We Are Not
Migraine is invisible but we are not and this is our voice. The voice of 40 million in the USA and 1 billion worldwide.
Read MoreWhat’s In Your Toolbox? Migraine Friendly Products
With an often overwhelming array of “products” that either claim to help migraine or make life more manageable, it can be hard to know where to start. In fact, it’s easy to throw our hands up and say, “This is simply too much” and end up relying only on pharmaceutical options. However, with a disease…
Read More5 Reasons to Join An Online Headache Community
Online groups have evolved over the years, but one thing has not changed – their ability to bring people who have something in common together, even though they are miles apart. They have served people for some time now, and have their own niche, a niche that is essential for connection and creating community.
Read MoreWhen the Migraine Monster Touches Your Child: Part 2
One of the saddest aspects about migraine from my perspective is that it doesn’t discriminate when it comes to age. I recently sat down with my oldest son, Joel, and talked about how migraine has impacted his life. What it was like growing up not only watching me in pain, but then dealing with it himself.
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